Assessment for all learners working within the
Equals Informal Curriculum designed for those

with Complex Learning Difficulties (CLD)

  • There are no assessment or progress norms for Informal Learners,
    therefore assessment for all learners experiencing CLD will therefore,
    of necessity, be individualised and ipsative.
  • The learner is where the learner is. We have to work with them where they are,
    and though we cannot leave them there, knowing where they are now,
    is an essential first step.
  • Stretch and challenge are hugely important, but first of all each learner must be
    engaged, and that engagement must be active, rather than passive. 
  • The nature of ‘work’ is highly likely to be different to that understood to be
    appropriate for neuro-typical learners of the same chronological age.
  • We are not trying to change the leaners, we are trying to facilitate
    and enable their growth.

Members: £50 when purchased with the informal curriculum.
Non-Members: £125 when purchased with the informal curriculum.


*Schools can only purchase this if they hold a licence for the
Equals Informal Curriculum Schemes of Work.

To place an order for the Informal Assessment please
email admin@equalsoffice.co.uk or you can ring using 0191 272 1222

For further information or to place and order please contact paul@equalsoffice.co.uk 



Welcome to the EQUALS
News and Discussion Forum

This forum is for professionals working with pupils with learning difficulties and disabilities.

Profound and Multiple Learning Difficulties (PMLD), Complex Learning Difficulties (CLD), Severe Learning Difficulties (SLD) and Moderate Learning Difficulties (MLD).

There are articles and news items from the Equals Chairperson; Chris Rollings, our Director of Developments; Peter Imray and from other Equals Trustees.  

If you are an Equals Member and would like to include anything from your school please contact paul@equalsoffice.co.uk



In-Person – An opportunity to visit a Curriculum Support School

This is an opportunity to visit an Exemplar School and spend time with senior leaders and in classrooms. The purpose of this day is to increase the understanding of a Informal and/or Semi-formal Curricula as well as being able to ask about assessment, planning or any other aspect of teaching and learning that you are interested in.

The Exemplar Schools involve specialist schools, where either Equals has provided additional consultancy over the past 2-3 years or where they are demonstrating best practice. They have been observed implementing Curriculum Schemes of Work well in their own school. These schools have provided presentations to Equals Members’, via Regional Curriculum Conferences over the past 36 months.

They are able to articulate how their curriculum:

  • can be implemented
  • how it works with other processes such as Mapping and Assessing Personal Progress
  • And to demonstrate the impact.

For further information please contact the Equals Strategic Development Manager; Paul Buskin using paul@equalsoffice.co.uk

Costs from £89 which goes towards expenses such as lunch/refreshments etc.

Further development days are being organised for Spring 2024 for the following schools.

  • Brackenfield School in Nottingham on the 25th June 2024
  • Dee Banks School in Cheshire – 22nd May and the 2nd July 2024
  • Fairview School in Perth, Scotland – 9th May 2024
  • Kingsbury School in Lancashire on the 22nd May 2024
  • St Ann’s School in London – Summer 2024 – Date TBC
  • Sunningdale School in Tyne & Wear on the 24th May 2024

For further information or to learn how to book a place please contact the
Equals Strategic Development Manager; Paul Buskin using paul@equalsoffice.co.uk





Imray P, Kossyvaki L and Sissons M (eds) (2024) A Different View of Curriculum and Assessment: for profound and multiple, complex and severe learning disabilities.

London. Routledge.

This book is about children, young people and adults (CYPA) who consistently and over time, reveal themselves to be working at early, and sometimes very early developmental levels. We use the word ‘developmental’ cautiously however, because we do not mean to imply that the CYPA who are described as having global learning disabilities are the same-but-delayed.  Learning for those with PMLD, CLD and SLD (all of whom have a global learning disability – GLD) is different, precisely because we cannot base notions of progression on schedules which are founded on the development of a different population, namely neurotypical conventionally developing infants and children.

We have used the commonly understood UK descriptors of PMLD (profound and multiple learning disabilities) and SLD (severe learning disabilities), and to these we have added a new descriptor, CLD (complex learning disabilities). Since a National Curriculum (NC) was instituted in the UK in 1988, all 21 authors’ teaching experience has come (officially at least) entirely within it. Although all schools and all teachers and TAs within these schools have tried to make the best of the NC2, all 21 authors reject it as an appropriate model. Irrespective of the level of differentiation, all national curriculums remain academic, upwardly linear in progression and start at levels that confound all but the highest achievers amongst those with global (rather than specific) learning disabilities.

Learners must achieve a level of fluent mastery in both literacy and numeracy merely to engage with the other subjects, never mind succeed within them. This is described in the levels achieved by neuro-typical 10/11 year olds, which seems to be the universally accepted age to move from the primary (generalist) phase to the secondary (specialist) phase of education. In other words, the purpose of any NC is to achieve at least the levels attained by the end of the primary phase, and if this cannot be attained by an individual because of the depth of their learning disability, the curriculum must axiomatically, be purposeless.

In response to this, Equals, a not-for-profit charity based in England, has over a five year period between 2016 to 2021, developed a multi-tiered curriculum model relating to PMLD, CLD and SLD. References to these separate, but very much related, curricula are common throughout the book and we make no apologies for this; schools cannot be expected to deliver the different curricula this book argues for, if there are no different curricula available. We have made no particular effort to go into the considerable detail and depth held within each curriculum (they are all available at www.equals.co.uk and free downloads can also be had of the Basic Principles of all of the very detailed schemes of work by application to the lead author3) but it should be noted that these are all-age curricula, and are certainly not confined to school age alone. The descriptors are fairly obvious, and the arrows relate to any defining characteristics being fuzzier at the edges; it is therefore possible that some learners working at the edges of the definitions noted below may be working within more than one curriculum for some or all of the time.



Pre sales zooms – Equals Curriculum Schemes of Work



The Equals Curricula and Ofsted.

Paper 1.

Engaging with the Ofsted phone call and opening discussions

This is a short ‘advice’ paper to schools already (or considering) working with any of the Equals ‘different not differentiated’ curricula such as the Pre-Formal (PMLD) Curriculum, the Informal (CLD) Curriculum or the Semi-Formal (SLD) Curriculum.

The main basis for this advice is founded on discussions with former SEND lead HMIs such as Nick Whittaker and Maxine MacDonald-Taylor and the latest Ofsted information on SEND in the EIF (Education Inspection Framework) which is held in a webinar video released on 10th November 2022. This is entitled ‘Ofsted inspections in special schools’ and can be accessed at https://www.youtube.com/watch?v=279-kf1R_hY

Equals is actively seeking discussions with the new lead HMI for SEND (Kathryn Rudd) and will keep schools informed of any new developments.

The first thing to say is that preparation for Ofsted will include informing the visiting Inspectors that your school is not working with the National Curriculum for all learners, and some schools may well extend that to not working with the National Curriculum for any learners. Most SLD specialist schools will have a very small handful who might be, or are well on their way to being, fluently literate and/or numerate. The first thing to establish during the initial telephone conversation however, is that you are running a ‘different not differentiated’ curriculum model based on the Equals multi-tiered curriculum pathways, for most of your learners.

We also strongly advise that your SEF clearly and unequivocally states the case. There is no statutory obligation to have a SEF, but it is an excellent opportunity for your school to go into some detail about what you do and most importantly, why you do it. In other words, you can go some way towards answering the first of Ofsted’s Three Is of Intent, Implementation and Impact. Don’t hold anything back and don’t leave the Inspector(s) expecting to see one thing and actually seeing something else when they arrive. Like all teachers, Ofsted Inspectors need to prepare, and if you’re preparing them for the wrong things, this will cause difficulties which can easily be avoided.

It is likely that the Inspectors will have heard of the Equals Curricula, but it is also quite possible that they have not. Do not however, assume that Inspectors, even HMIs, will have a deep and meaningful understanding of any of the Equals Curricula in detail. Senior leaders should therefore have a sound understanding of the pedagogical justification for not teaching the National Curriculum and must be able to talk the talk! The point about this is, that ‘walking the walk’ (teachers being super-confident in their ability to understand and teach the various ‘subjects’ in the various Equals Curricula) will take time – at least two and quite possibly five years. Ofsted will not expect all teachers to be perfect, but SLT and teachers must know and believe in the reasons for change. Equals can offer practical support in this process – talk to Paul Buskin at Equals if you are interested in exploring this further.

Change is always problematic, and curriculum is the most fundamental change that a school can envisage. However, having a clear understanding of why you’re changing is a necessary pre-requisite and all stakeholders, leaders, teachers, governors and parents need to be able to hold a conversation on this. When faced with Ofsted, senior leaders must be the most knowledgeable of all and should be able to hold their line in any academic discussions that might arise.

Your main lines of ‘talking the talk’ might be

1. That you hold very high ambitions for all of your learners. Ofsted talk a lot about having ‘high ambition’ for those with SEND, though they do not say exactly what they mean by this, since it is up to each individual school to talk this talk, according to the school’s individual circumstances. In Equals terms, the school is demonstrating high ambition for all by adopting a curriculum model which seeks to enable each and every learner to be the best they can be and do the best they can do, regardless of their disabilities.

It is strongly recommended that school leaders, teachers and governors spend time with the Basic Principles sections of at least the four core Semi-Formal Curriculum ‘subjects’ of My Communication, My Play, My Independence and My Thinking and Problem Solving, as well as Basic Principles sections of the Informal Curriculum and the Pre-Formal Curriculum, assuming your school also houses learners with PMLD and CLD (Complex Learning Disabilities). Reading these through and discussing the issues with colleagues will help to ground the theory, and understanding the theory is a really important first step. It is also really important that new staff (and new governors) are encouraged to do the same as they begin their work with the school.

2. That you’re not trying to cure the learning disability by constantly teaching knowledge and skills to pupils (such as in a Systematic Synthetic Phonics programme) when the pupils are consistently and over time, unable to progress. Those with PMLD and SLD learn differently to neuro-typical, conventionally developing learners, and if the learn differently, we ought to teach them differently and teach them different things (Imray and Hinchcliffe, 2014; Imray and Colley, 2017). The Curriculum Imperative, a chapter from this latter book which goes into some detail about learning differently is obtainable from direct request to Sarah Binns at Equals via sarah@equalsoffice.co.uk  

3. That you’re basing your curriculum on the fact that there is no research evidence, anywhere in the world, that indicates that fluency in literacy and numeracy is possible from a position of established profound, complex or severe learning disability. There is quite an amount of research about marginal gains being possible with intensive support, but none that states that short term marginal gains can be maintained over time. There is also quite an amount about ‘catch-up’ being possible for some with SEND, but none which says that all with SEND can achieve such success. The latest on research into SLD and PMLD is reviewed in Imray P, Kossyvaki L and Sissons M (2023) Evidence-based practice: the use and abuse of research. Support for Learning. 38 (1). You can obtain a free download of this article at https://nasenjournals.onlinelibrary.wiley.com/doi/full/10.1111/1467-9604.12438

A separate short paper on Deep Dives into Reading, Writing and/or Mathematics will also be made available at www.equals.co.uk over the next month or two.

Peter Imray

8th March 2023



Equals National Conference – 28th June 2024 – Central London

Squaring the Circle

Achieving Good and Outstanding judgements with the successful delivery of Different (non-National Curriculum) Curricula for children and young people with Profound, Complex and Severe Learning Disabilities.

Date: Friday 28th June 2024

Venue: Friends House, 173-177 Euston Road, Central London, NW1 2BJ.

An increasing number of specialist schools are recognising the need for non-traditional curriculum models (such as the Equals Multi-tiered Curriculum) as an alternative to a differentiated National Curriculum to effectively meet their pupil’s needs. Clearly however, not teaching TRADITIONAL National Curriculum subjects, naturally creates a concern for schools and how this might be viewed by Ofsted.


Starting with a reminder of Ofsted’s current Inspection Framework, and how this relates to SEND, delivered by an Ofsted HMI, the day will continue with a succession of interactive talks from leaders of Outstanding Equals Exemplar Schools, on the key issues identified by them in attaining both Outstanding and Good Ofsted judgements over the last 18 months.


These key issues have been identified as:

  • Preparation
  • The deep dive into Reading
  • Other deep dives – negotiable or not?
  • Successfully demonstrating high ambition for all learners at all stages of development, but especially the most academically able
  • Base-lining all learners
  • Adopting an analytic approach to teaching and learning
  • Successfully demonstrating impact

Speakers will include:

  • A senior Ofsted HMI to discuss the Inspection Framework and specifically look at deep dives.

To learn more, please email paul@equalsoffice.co.uk

Our last six conferences have been 100% full and oversubscribed so early booking is recommended.

Cost: Only £299 +VAT for Equals Members, £599 for non members.

To book a place please » click here



Equals Online Training – 100% FREE for Equals Members

One of the many benefits of becoming an Equals member, is the opportunity for ALL teachers and support staff to attend online CPD sessions for FREE. These are provided as twilights and take place after most pupils have left for the day between 3:45 and 5:15 pm.


As these sessions are hosted LIVE, there are opportunities to ask questions and share best practice.

For further information please visit

» Equals Events



Education inspection framework (EIF)

The education inspection framework (‘the framework’) sets out how Ofsted inspects maintained schools, academies, non-association independent schools, further education and skills provision and registered early years settings in England.

The framework has been devised by His Majesty’s Chief Inspector for use from September 2019. It sets out the principles that apply to inspection, and the main judgements that inspectors make when carrying out inspections of maintained schools, academies, non-association independent schools, further education and skills providers and registered early years settings in England (for a full list, see » ‘provision inspected under the framework’).

The framework applies to the inspection of different education, skills and early years settings to ensure comparability when learners move from one setting to another. It supports consistency across the inspection of different remits.

» click here to view the new Inspection Framework from Ofsted – May 2019



Autism Eye

www.autismeye.com

  • Information and Advice for Parents and Professionals



NASEN – Helping Everyone Achieve

www.nasen.org.uk
• The magazine from NASEN. An organisation aiming to promote the education, training, advancement and development of everyone with special and additional support needs.

SEN Magazine

SEN – home • SEN Magazine

• SEN Magazine is the UK’s leading journal for Special Educational Needs. Useful and thought-provoking articles written by specialists in the field. Contact us: info@senmagazine.co.uk



Bespoke Online Sessions

Equals can provide bespoke online sessions with groups of 4-5 schools, where their Curriculum and Assessment needs are similar for a more in-depth session for any Equals members that currently hold licences, have maintained their Equals membership and have at least attended some of the online CPD sessions which are free for members for multiple schools/and an in person regional event/development day.



Timpson Review of exclusions – May 2019

Schools will be made accountable for the pupils they exclude and there will be a clampdown on off-rolling, as part of Government measures taken in response to the Timpson Review of exclusions.

The review, published (7 May 2019), makes 30 recommendations to Government as it highlights variation in exclusions practice across different schools, local authorities and certain groups of children. The report concludes that while there is no optimal number of exclusions, there needs to be action to ensure permanent exclusions are only used as a last resort, where nothing else will do.


click here to read more and to view the full report.

Independent report

Rochford Review: final report

Statutory assessment arrangements for pupils working below the standard of national curriculum tests at key stages 1 and 2 (known as SATs).

This report sets out the recommendations of the independent Rochford Review group. It follows the publication in December 2015 of the Rochford Review’s interim recommendations.

The final report’s recommendations include:

  • the removal of the statutory requirement to assess pupils with SEND who are working below the standard using performance scales (P scales)
  • that the interim pre-key stage standards for pupils working below the standard of national curriculum tests are made permanent and extended to include all pupils engaged in subject-specific learning
  • that schools assess pupils’ development in all 4 areas of need outlined in the SEND Code of Practice, but statutory assessment for pupils who are not engaged in subject-specific learning should be limited to the area of cognition and learning

click here to view the Rochford Review: final report

A new EYFS resource to support assessment
and recording in the Early Years Foundation Stage


An interactive learning journal designed specifically for children with complex and profound learning needs.

These materials reflect the key principles of the revised EYFS; reducing time spent on recording and recognising the importance of qualitative data and practitioner knowledge in order to provide high quality assessment for learning.



  • Records progress from the start of each child’s unique learning journey and keeps the child at the centre of the process
  • Emphasis on personalised strengths and significant characteristics of each child in order to capture progress without the use of checklists or excessive data
  • Provides useful links to support the transition beyond EYFS
  • A celebratory document that can be shared with parents, carers and child.

Contents



An Introduction and Guide to Using the Materials

  • My Communication & Language Development
  • My Physical Development
  • My Personal, Social & Emotional Development
  • My Cognition & Learning and EYFS Characteristics

Skills Maps

  • To Support Observational Assessment and Recording


An Interactive Learning Journal



Cost

£50 for Independent Nurseries, £60 for Equals Members and £70 for Equals Non-members

To order these materials please email admin@equalsoffice.co.uk


To learn more about these new materials from Equals, please contact paul@equalsoffice.co.uk
and previews can be provided via online sessions using Zoom or Teams.




Broad baseline assessments are fundamental as you change from one curriculum model to another (for example, from the National Curriculum (NC) to an Equals based Semi-Formal Curriculum) and of course for any new intake whenever they first join the school. As such there are three processes I would suggest you go through. The first is fairly simple, the second, slightly more complicated but quick, and the third will relate directly to the individual learner’s EHCP.


1. Look at the Pre-Key Stage Standards, but specifically Standard 6 at KS 2 in English Reading, English Writing and Mathematics. These are the average levels achieved by neuro-typical, conventionally developing 7 year olds i.e. the level achieved at the end KS1 and tested through the KS1 SATs. In order to justify continuing with an academic curriculum model (such as the NC) Individual learners should be able to know all of the levels without prompting or support, or at least make a pretty good fist of them. The slight complication relates to the chronological age of the children you’re baselining, because you don’t want to give up on the potential of achieving fluency in literacy and/or numeracy too early. However, if your primary pupils have not reached these levels by the time their 8 or 9, alarm bells ought to be ringing; if they haven’t reached them by the end of KS2, the alarm bells ought to be deafening. There is absolutely no research to indicate the children with SLD become adults without SLD – quite the opposite. All of the research indicates neuro-typical 7 year olds will attain a sufficient level of literacy and numeracy fluency by the age of 11. All of the research evidence indicates that those with PMLD and SLD will not achieve that level of fluency, though of course all may still achieve functionality. However, one doesn’t need number to be able to discern functional quantity (one £1 coin, one £5 note, one £10 note, one cup of flour, one slice of toast, one small loaf of bread etc etc.) and one doesn’t need phonics to read key functional words – everyone knows McDonald’s and Sainsbury’s without decoding – or become a functional communicator.  

This level of baselining therefore justifies a non NC approach, since it is impossible to teach the NC if your learners are neither literate nor numerate. If learners are not achieving, and in your collective, multi-disciplinary, professional and specialist view, are highly unlikely ever to achieve the levels averagely attained by neuro-typical 7 year olds, there is no point in constantly teaching your learners to constantly fail. Your efforts should instead be concentrated on maximising functionality across a wide range of areas (the schemes of work or ‘subjects’ of for example, the Semi-Formal Curriculum) rather than achieving literacy and numeracy fluency.


2. The second baselining determines the broad curriculum pathway relevant for each individual learner. This is more complicated because the only logical way of doing this is through the P Scales, and your newer teachers won’t know them. Such assessments do not have to be precise, because they are broad measurements, so that your PMLD learners (P1 to P3) will be working broadly within the Pre-Formal Curriculum, your CLD (Complex Learning Difficulties and P4/P5) learners will be working broadly within the Informal Curriculum and your SLD learners (P6+) will be working broadly within the Semi-Formal Curriculum. It might be logical to repeat this annually, but this process should only take minutes (at most) for each learner in that it will be a confirmation through a broad multi-disciplinary collective assessment that the individual learner will be working on x curriculum pathway for the next academic year.


3. A simple, annual, baseline assessment using Routes (or Quest) for Learning for your PMLD cohort, or MAPP for your SLD cohort related broadly to the EHCP long term outcomes will help to inform stakeholders (parents, governors, Ofsted) that continuity of teaching and learning is being considered. This is a particularly troublesome area for Ofsted who will be denied the structured and linear familiarity of the National Curriculum and will need some ‘guidance’, especially when faced with process based curriculum models such as the various Equals curricula. When doing a deep dive into Maths in a mainstream primary school, Ofsted will pick a learner who might for example, be working on place value in the discrete Maths sessions and correct sentence structure in discrete English writing sessions, and will want to track other topic based sessions to ensure that such work is being re-enforced. Continuity within a non-linear curriculum model is however, not straightforward, so much work needs to be done with the EHCP outcomes so that they broadly relate to an agreed understanding of what each learner might be able to do and might be able to be, by the time s/he is 19. That is, your EHCP outcomes must be broad not specific, and certainly not SMART. I’m thinking of setting up an Equals Zoom twilight on ‘EHCP Outcomes in a non National Curriculum Model’ because this is an issue quite a number of schools have a problem with. No doubt Paul at Equals will keep you posted.

Peter Imray

20th September 2022



New from Sept 2022 –
Assessing & Recording Progress
within the EYFS

A new EYFS resource to support assessment
and recording in the Early Years Foundation Stage

An interactive learning journal designed specifically for children with complex and profound learning needs.

These materials reflect the key principles of the revised EYFS; reducing time spent on recording and recognising the importance of qualitative data and practitioner knowledge in order to provide high quality assessment for learning.

  • Records progress from the start of each child’s unique learning journey and keeps the child at the centre of the process
  • Emphasis on personalised strengths and significant characteristics of each child in order to capture progress without the use of checklists or excessive data
  • Provides useful links to support the transition beyond EYFS
  • A celebratory document that can be shared with parents, carers and child.

Contents

An Introduction and Guide to Using the Materials

  • My Communication & Language Development
  • My Physical Development
  • My Personal, Social & Emotional Development
  • My Cognition & Learning and EYFS Characteristics

Skills Maps

  • To Support Observational Assessment and Recording


An Interactive Learning Journal

Cost

£50 for Independent Schools, £60 for Equals Members and £75 for Equals Non-members

To order these materials please email admin@equalsoffice.co.uk

To learn more about these new materials from Equals, please contact paul@equalsoffice.co.uk
and previews can be provided via online sessions using Zoom or Teams.



Whole Day Workshop Application

Conference:
Date:

 

Cost: £149 + VAT for Members and £249 + VAT for Non-Members.
(payable by cheque or BACS – details of how to pay will appear on your invoice)

There will be a key note speaker, followed by a selection of workshops

School/ Organisation:
School Order No/ LA:

Names of the delegates:

Address:

Telephone:
Fax:

Membership No:
Email:

 

posted by Peter Imray on the 10th January 2020

Background.

The delivery of Relationships and Sexual Education (RSE) will become compulsory in English schools from September 2020. This has always been a necessary, though challenging subject to teach to pupils and students with profound and multiple learning difficulties and severe learning difficulties (Stewart et al, 2015) with or without an additional autistic spectrum condition, because the very nature of relationships is naturally flexible, movable, contextual and therefore engages with numerous abstract constructs and situations. One of these concerns the nature of masturbation, particularly in relation to where and when one can do it. It is relatively easy to teach about private and public and though the lessons may for some, take a long time to learn, they are learnable by most.

However, a very small number of people, usually the most complex with the greatest degree of learning difficulty and the highest level of need, may well find extreme difficulty in deferring sexual release and indeed, in understanding the necessity to defer sexual release. It has therefore become fairly common practice for special schools particularly, not only to allow pupils who are obviously in need to use a locked cubicle in a school toilet to masturbate, but also to actively encourage those who are obviously in need to do so. That is, it has become an essential part of the curriculum and teaching process to encourage learners to take responsibility for self-regulation. They can only do this if they can have access to an immediate solution, such as using a locked cubicle in a school toilet.

Part of my responsibilities as Director of Developments at Equals (a UK Based not-for-profit charity working for the educational interests of people with SLD and PMLD and their families) is to develop curriculum materials. In order to discover the latest thinking in the area of RSE and learning difficulties, I attended a one day course recommended by the Sex Education Forum (SEF) run by two very experienced workers in the field namely, Mel Gadd and Claire Lightley. They advised in the strongest possible terms, that the strategies evolved by special schools over a number of years are illegal and therefore invite prosecution of both students and staff.


This short paper is written with a desire to find areas of agreement that can overcome an apparently intractable contradiction. That is, whilst the argument on the illegality of the act of masturbation in a school toilet (or indeed in any public toilet) whether in a locked cubicle or not, is certainly factually correct, I would suggest that the Sexual Offences Act 2003, does not mean that:

‘if you allow or enable a person with learning disabilities to masturbate in a public place or where other members (especially other children) of the public access, such as a school or college toilet, you are potentially enabling or/and committing a sexual offence and placing the young person and yourself at risk of prosecution.” (Gadd, 2018)


Indeed, I am arguing that such advice is

(i) positively harmful to the mental well-being of a number of young people and adults with severe learning difficulties (SLD) and profound and multiple learning difficulties (PMLD);
(ii) in direct contravention of the Equality Act 2010 and Article 14 of the European Convention on Human Rights;
(iii) potentially and unnecessarily placing in physical danger those who are supporting young people and adults with SLD and PMLD, as well as other members of the public, other students and indeed the persons themselves;
(iv) in direct contradiction to the process of maximising independence in learners, particularly with regard to maximising opportunities for all learners in all circumstances to take control of, and be responsible for, their own behaviours.

Let me expand on these one at a time.


1. Literal enaction of Sections 17 and 71 of the Sexual Offences Act 2003, may well be positively harmful to the mental well-being of a number of young people and adults with SLD and PMLD.

Gadd and Lightley are rightly insistent that masturbation is a natural, normal and pleasurable activity, and that:

…..every young person with learning disabilities receives programmes of education on growing up, sex and relationships tailored to age and developmental ability. (Gadd, 2018 p5)

There are however a small but growing number of children, young people and adults, presenting with very complex needs (Pinney, 2017) for whom Carpenter (2011) has described schools as being ‘pedagogically bereft’. That is, their needs are so severe, so different, so complex, they do not fit into any category for whom the current education system has an answer. One thing is certainly clear; it is not possible to instruct these young people to do anything they don’t want to do and have any reasonable expectation that they will concur (Imray, 2018; Imray et al 2017).

Interestingly, two of the examples used (Gadd, 2018 p5 and Gadd, 2019 p7) talk of a young man with the developmental age of a six year old, and advises that he should wait until he gets home. In severe learning difficulties (SLD) terms, this is the equivalent of a very high functioning learner who is possibly able to defer gratification and fully understand the concept of waiting until he gets home. There are however, many with SLD, particularly those functioning consistently and over time within the lower levels of the P Scales, that is, well below the developmental age of six, and all with PMLD, who do not, and by definition, cannot, have this level of understanding. One might as well expect a 12 month old to stop crying on demand because this is not an appropriate place to cry.

Further, even the young man with the developmental age of 6 is unlikely to be able to do what other neuro-typical, conventionally developing teenagers in school can do and often do do; that is, ask to go the toilet when he wants to masturbate. As long as the neuro-typical, conventionally developing teenager doesn’t advertise the reason for going to the toilet, no-one is going to deny him. The neuro-typical teenager probably knows that it’s perfectly normal and natural to masturbate, works out that the only way he can concentrate on his school work is to relieve himself, and takes himself off, making sure to lock the cubicle door and not draw attention to himself. If someone with SLD, even a high functioning person with SLD, is to have the same right, we will have to teach him that it’s a positive thing to do. It is highly unlikely that he will be able to work this out for himself because this is generalising understanding and if he found this level of generalising easy, he wouldn’t have SLD.

We therefore have to spend a considerable amount of time positively teaching him that it is a good thing to go to the toilet to relieve himself when he is not able to suppress his sexual excitement, providing he follows certain basic rules, such as locking cubicle doors. It is, I would suggest, contradictory to argue that masturbation is normal, natural and good, but masturbating when one really needs to, is bad. Such a stance can only lead to confusion and misunderstanding and will quite possibly be extremely deleterious to his good mental health. We would not consider denying other natural desires; we accept that ensuring sufficient food, water, exercise, warmth, kindness, love etc is good for one’s mental health. If a learner desires food and water now, it would be perverse and even abusive to demand that the learner defers this desire for several hours; why should we do this for masturbation?

Given these conditions, it seems reasonable that we teach all those with learning difficulties, whether high functioning or not, a certain clear, basic principle. That is,

any form of sexual activity needs to take place in private, this means in places where other people are not and I can be by myself (Gadd, 2019).

This phrase is taken from the handout given on the day of the course. My argument is that a toilet with a locked door (wherever the toilet is) is a place where ‘other people are not and I can be by myself’.


Secondly, it can be argued that the Gadd and Lightley advice is in direct contravention of the Equality Act 2010 and Article 14 of the European Convention on Human Rights.

The nature of the law is that by and large, it operates under the principle of reasonableness. One can see this in the recent judgement of Judge Rowley (Sellgren, 2019).

Judge Rowley questioned whether the law as it stands within the Equality Act discriminates against children who habitually express challenging behaviour, which is itself part (and sometimes a very central part) of their SEND. The key lies in recognising that “aggressive behaviour is not a choice for children with autism”. In making this statement Judge Rowley held that:

“In my judgment the Secretary of State has failed to justify maintaining in force a provision which excludes from the ambit of the protection of the Equality Act children whose behaviour in school is a manifestation of the very condition which calls for special educational provision to be made for them. In that context, to my mind it is repugnant to define as ‘criminal or anti-social’ the effect of the behaviour of children whose condition (through no fault of their own) manifests itself in particular ways so as to justify treating them differently from children whose condition has other manifestations.”

We know, do we not, that expressed and overt challenging behaviour is a common feature of a number of conditions that fall within the SEND umbrella. Autism is certainly one, but it is also fairly common in those with severe learning difficulties, moderate learning difficulties and profound and multiple learning difficulties, and when these conditions are mixed, that is ASD plus SLD for example, it is even more likely (Emerson et al, 2014 for example). Indeed, challenging behaviour has long been regarded as being ‘normal’ for those with learning difficulties (Hewett, 1998). We know also that the nature of challenging behaviour is enormously disabling for those who are stuck in the cycle (O’Brien, 2016; Ashton, 2015 for example) and that challenging behaviour is defined by us.

‘Challenging behaviour’ is a socially determined construct. Reiteration of this construct and its accepted definition is necessary to focus assessment, formulation and interventions on the relationship between the individual and their environment, rather than on the elimination of behaviours. (Learning Disabilities Professional Senate, 2016, p4)

Imray (2018) argues that recognition of this has profound implications for how we, as educators, carers, advisors, supporters etc respond.

Let’s just deconstruct this statement, because this is very, very important. Challenging Behaviour, with capital letters and as a ‘category’ or as a label which we might assign to a child, young person or adult is not the same as severe learning difficulties or profound and multiple learning difficulties or autism. These are also categories or labels, but it is not possible to change them. A child who has SLD will grow into an adult with SLD and there is nothing anyone can do about this. It is not because of bad teaching, or bad schooling, or bad parenting; it is what it is. It might be considered to be an impairment, in the same way as having no right arm is, though it is not necessarily disabling, if we as a society choose not to make it so. (Imray, 2018 p7)

We can however, decide the opposite course and actively choose to make the impairment disabling. That is, we can (and often do) choose to disable, by for example, insisting that all children conform to our rules, do things our way, cope with situations and stresses that we can cope with, communicate in ways in which we communicate, are interested in things which we find interesting, obey rules which we are able to conform to, are conversant with and apply social rules which we have put in place etc, etc, etc. We do all of these things even when we know that children will have difficulties in doing so, and all of their behaviours are telling us that they have no interest in doing so. In such situations we should not be surprised when some children raise objections. And this is very much the point, the objections are highly likely to be physical expressions of challenging behaviour, often violent, often painful, because those who are expressing them have no other way because of their SEND. Children who express habitual challenging behaviours do not do so out of choice, they do so because they have no other way (Imray and Hewett, 2015).

Article 14 of the European Convention on Human Rights obliges us to reach decisions which do not involve us acting irrationally, given the information we have before us. It requires that all of the rights and freedoms set out in the Act must be protected and applied without discrimination. Discrimination occurs when one is treated less favourably than another person in a similar situation and this treatment cannot be objectively and reasonably justified.

Similarly, the spirit of the Equality Act is to state very clearly and plainly that we cannot use a person’s impairment as a reason to disable them. We would I’m sure regard it as ‘repugnant’ to suggest that someone without physical mobility should be excluded because they can’t get to their next classroom under their own volition. The issue relating to challenging behaviour, and indeed masturbation, is no different. Judge Rowley has (rightly) argued that the law must not be interpreted in a way that disadvantages those with SEND. Not offering a person an opportunity to sexually relieve him or herself in the same way that is open to those without a learning difficulty (by for example, innocently asking to go to the toilet) is effectively discriminating against that individual because of his/her learning difficulty.


3. The advice potentially and unnecessarily places in physical danger those who are supporting young people and adults with SLD and PMLD, as well as other members of the public, other pupils and indeed the persons themselves.

I don’t think I need to overly expand on this, because the arguments have already been made. Most with learning difficulties may be able to defer sexual relief, some will not. Those ‘some’ may well react in a negative manner, which may be physically violent in nature, and to be honest, who would blame them.

If a learner has communicated a basic request – I am hungry and need food, I am thirsty and need drink, I am cold and need warmth, I am frightened and need comfort, I am sexually frustrated and need relief – but this is being refused, it is not unreasonable that the person being refused gets annoyed. Why would they not? Clearly the level of that annoyance will vary from person to person, but those who are doing the refusing have to expect challenging behaviour, and no amount of admonitions, strong/strict voices, clear instructions etc. will overcome this crisis. The point is here that this is entirely unnecessary. All learners can be taught to take control of their own behaviour, providing they are given control over the resolution. If we are not willing or able to give them control, we mustn’t be surprised at the behaviour.


4. Lastly, and following on from the points above, the advice is in direct contradiction to the process of maximising independence in learners, particularly with regard to ensuring wherever possible, that all learners in all circumstances take control of, are responsible for, and crucially, are able to self-regulate their own behaviours.

We can, through repetition and constant over-learning, ensure that all learners with SLD at least understand

  • which parts of the body are universally private
  • that permission is central to touching others and being touched by others, especially on private parts of the body
  • that sexual acts such as masturbation must be conducted in a private space
  • that a private space means somewhere where I can lock the door, where other people are not and where I can be by myself
  • that I will be taught the exact geographical location of private spaces and public spaces in the environments that I normally inhabit such as school, home, out in my local community etc.

If we are reliant on members of staff telling learners what they are not allowed to do, and ensuring that they do not do what they are not allowed to do, the individual with learning difficulties will always be reliant on such people making the decision. Any notion of independence will be a sham since we are fostering a paternalistic relationship where those without learning difficulties always know best and will always be directive.

Peter Imray
9th January 2020


References

Ashton B (2015) Promoting Positive Behaviour in S Martin-Denham (ed) Teaching Children and Young People with Special Educational Needs and Disabilities. London. Sage.

Carpenter, B. (2011) Pedagogically Bereft!: Improving learning outcomes for children with foetal alcohol spectrum disorders. British Journal of Special Education 38 (1): 38–43.

Emerson, E., Blacher, J., Einfeld, S., Hatton, C., Robertson, J., & Stancliffe, R.J. (2014). Environmental risk factors associated with the persistence of conduct difficulties in children with intellectual disabilities and autistic spectrum disorders. Research in Developmental Disabilities, 35, 3508–3517.

Gadd M (2108) Common concerns and suggested solutions: Guidance document 2017. FPA Project Jiwsi.

Gadd M (2019) Masturbation: Working with people with learning disabilities. Lightly Consulting/Cwmni Addysg Rhyw/Sex Education Company.

Hewett D (1998). Challenging Behaviour is Normal in P Lacey and C Ouvry (eds) People with Profound and Multiple Learning Difficulties. London. David Fulton.

Imray P (2018) Turning the Tables on Challenging Behaviour (2nd ed). London. Routledge.

Imray P, Colley A, Holdsworth T, Carver G and Savory P (2017) Listening to Behaviours: adopting a Capabilities Approach to education. The SLD Experience. 76: 3-9.

Imray P and Hewett D (2015) Challenging Behaviour and the curriculum in P Lacey, R Ashdown, P Jones, H Lawson and M Pipe (eds) The Routledge Companion to Severe, Profound and Multiple Learning Difficulties. London. Routledge.

Learning Disabilities Professional Senate (2016) Challenging Behaviour: A Unified Approach. London. The Royal College of Psychiatrists.

O’Brien, J. (2016) Don’t Send Him in Tomorrow: Shining a Light on the Marginalised, Disenfranchised and Forgotten Children of Today’s Schools. Carmarthen. Independent Thinking Press.

Pinney A (2017) Understanding the needs of disabled children with complex needs or life limiting conditions. London. Council for Disabled Children/True Colours Trust.

Sellgren K (2019) School exclusion of autistic boy unlawful, judge rules. Katherine Sellgren, BBC News education report; accessed at www.bbc.co.uk on 19th October 2019.

Stewart D S, Mallett A and Hall T (2015) Sex and Relationships Education in P Lacey, R Ashdown, P Jones, H Lawson and M Pipe (eds) The Routledge Companion to Severe, Profound and Multiple Learning Difficulties. London. Routledge.



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